Creating meaningful group experiences

Welcoming people

How we meet and connect matters. Involvement is more than simply asking for input. It is about creating space where people feel welcome, valued, and able to be themselves.

For those living with dementia, joining a new group or space can feel overwhelming. And the early moments of involvement can shape how people experience the whole project.  Taking time to build relationships, reduce uncertainty, and foster a sense of belonging can make a big difference.

Welcoming people involves:

  • Personal introductions like one-to-one conversations before joining a group.
  • Clear and kind communication: Refrain from jargon and assumptions
  • Warm spaces: Create familiar, calm, and not overly formal spaces
  • Meaningful first experiences: Create opportunities to connect through shared values, stories, or creative activities that go beyond the research
  • Respecting autonomy: people should be supported to choose how, when, and if they want to contribute.

Further reading

Ongoing collaboration and motivation

People stay involved when they feel they matter. To sustain meaningful involvement, we need to foster reciprocity, flexibility, and shared ownership. That means doing with, not doing to and valuing people not just for what they contribute, but for who they are.

Motivation grows when people feel they are making a difference; and when they feel difference is welcome.

Group collaboration works best when:

  • People are seen and heard: Space is made for different ways of expressing, contributing, and connecting
  • There is support, clarity and flexibility: People understand what to expect and can shape what happens next
  • The group has rhythm and care: Regular meetings, social connection, time to reflect and time for joy.
  • Involve people in shaping the group over time.
  • Celebrate progress and impact together.

Recognising change is important. People’s preferences, needs and priorities shift, especially with progressive conditions like dementia. Adapting together, with kindness and curiosity, is central to good group dynamics.

Further reading