What TREE stands for

Dementia TREE

T: Trust and relationship building

Establishing trust is essential, especially when engaging with people and communities that are often underserved by health services and research. Building meaningful relationships over time encourages collaboration and ensures that research is conducted in a manner that is respectful and considerate of people’s backgrounds and experiences.

R: Respect and inclusivity

It’s crucial to respect the independence of individuals with dementia and recognise the value of their experience as equal partners in research. This means avoiding assumptions about their abilities and ensuring they can be involved without unnecessary barriers. Inclusive research practices involves creating opportunities, supported by kindness, interest and imagination, where individuals with dementia can share their experiences and insights, leading to mutual learning and a sense of shared purpose.

E: Empathy and understanding

Recognising the individuality of each person’s experience with dementia is essential. This involves listening with interest and kindness, being open to different perspectives, and taking time to understand people’s stories and what matters to them. By meeting people where they are and shaping approaches around their lived realities, involvement becomes both respectful and meaningful.

E: Experience

Approaching involvement in dementia research with humility helps create space for the unique insights that come from lived experience. Staying open to learning from people living with dementia supports more equal, trusting relationships and enriches understanding. This creates space for dialogue and a more collaborative research journey for everyone involved.